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Inspirational Australian tragically dies at the age of 22 surrounded by family and friends: ‘RIP my angel’

  • Inspirational Aussie with dwarfism dies age 22
  • Leo Lagana had been in and out of hospital
  • He was born weighing 1.6kg and was 28cm long

An inspirational Australian with dwarfism has died at the age of 22.

Leo Lagana was born with primordial dwarfism type II, which causes skeletal abnormalities, and was 93cm tall and weighed 20kg.

He had been in and out of hospital over the past month, as his condition deteriorated and died on Monday morning.

He had a rare form of primordial dwarfism (pictured with American basketball player Michael Holyfield who is 2.11 metres tall)

He had a rare form of primordial dwarfism (pictured with American basketball player Michael Holyfield who is 2.11 metres tall)

‘I’m so sorry I couldn’t do more for you …’ his heartbroken mother said on Facebook.

Hundreds have remembered Leo for his strength and determination in tributes posted online.

‘I am heartbroken at the passing of Leo,’ Patricia Palombo Grasso said. ‘I can only imagine the pain the family are feeling.

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‘Leo in one way or another has touched us all over the years. He was a strong and determined little man who brought all of joy, tears and courage. We are all blessed to have known him.’

‘I am deeply saddened to hear of the passing of this brave little man Leo Lagana who has endured many health challenges in his short life,’ Libby Petrella added.

Pauline Lagana pictured, left, with her son Leo, right

Pauline Lagana pictured, left, with her son Leo, right 

Before his death, Leo’s mother dedicated countless hours trying to raise awareness of his condition after he was bullied on social media. 

‘People come up to me and say, “What’s wrong with him?” I don’t mind at all. It’s better they ask, rather than standing there and staring,’ she said. 

‘I think the world needs to be educated.’

Ms Lagana said she and her husband ‘hit the jackpot’ with Leo and they have enjoyed every day with him. 

She previously said her son ‘walks down the street like he’s 10ft tall’ thanks to his ‘loud, gregarious, cheeky and very social’ personality.

The schoolboy defied doctors since he was born weighing just 1.6 kilograms and 28 centimetres long.

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